Articles, Blogs and Mentions
Rheumatoid Arthritis Activism Produces Resilience and Other Rewards (Everyday Health, March 7, 2018)
It's Dangerous to Deny Coverage to Chronically Ill (The Sacramento Bee, November 28, 2017)
5 Ways Insurers Block Patient Access to Care (FierceHealthcare, October 16, 2017)
Study: U.S. Healthcare Denials on the Rise (The Detroit News, October 15, 2017)
Survey Finds Millions of Insured Americans Denied Treatment for Chronic Illness (Nurse Talk Radio - Syndicated, September 13, 2017)
CreakyJoints Recruits Over Eleven Thousand Patients Into ArthritisPower (BusinessWire, September 12, 2017)
When Will Patients Benefit from Deepening Infliximab Discounts? (The Center for Biosimilars, September 5, 2017)
How Insurance Denials Hurt Patients and Industry (U.S. News and World Report, August 22, 2017)
How to Get Lower Drug Prices Now and in the Future (The Doctor Weighs In, August 15, 2017)
Caregivers: Vital to Arthritis Management (MedPage Today, August 11, 2017)
So often the healthcare debate sheds very little light on the role insurance companies play. (Nurse Talk Radio - Aug 7, 2017)
CreakyJoints and Global Healthy Living Foundation Offer Advocacy, Education and Community (Healio, August 1, 2017)
It's Time to Call a Cease-Fire on Drug Pricing (U.S. News and World Report, July 7, 2017)
Gout is Out of Control, But It Doesn't Need to Be (U.S. News and World Report, June 9, 2017)
Say What? When Miscommunication Means Life or Death (Rheumatology Network, May 31, 2017)
Medical News: Real or Fake? (U.S. News and World Report, May 23, 2017)
Arthritis Advocacy Group Pushing for Transparent Drug Pricing (Pharmaceutical Processing, April 18, 2017)
Three Ways Seniors Can Get More From Their Smartphones (Caswell Messenger, March 29, 2017)
Fight Against Arthritis Enlists Patients with Mobile Tools (Health Data Management, March 29, 2017)
ICER Report Claims RA Tx Is Not Cost Effective (MedPage Today, March 28, 2017)
What to Do if You're Denied Coverage for a New Cholesterol Drug You Need (U.S. News and World Report, September 9, 2016)
When it Comes to Drug Pricing, It's Time for Patients to Stand Up and Be Counted! (The Hill, September 9, 2016)
Critics say Medicare Rule can Cut Access to Lifesaving Drugs, (CNBC.com, June 23, 2016)
Step Therapy Bill is Passed in Both Houses (Albany Times Union Blog, June 16, 2016)
A New Dad's Advice on Coping with Sleep Deprivation (U.S. News and World Report, January 21, 2016)
A New Dad's Advice to Expecting Fathers (U.S. News and World Report, December 16, 2015)
Drug Ads Need to Change (U.S. News and World Report, December 3, 2015)
Only in America: Baby on the Way, Health Insurer Belly Up (U.S. News and World Report, December 2, 2015)
Why Robert Califf Deserves to be FDA Commissioner (U.S. News and World Report, October 7, 2015)
The Problem with Drug Recalls (U.S. News and World Report, June 1, 2015)
Everyone Benefits from Research, But What Are Your Responsibilities? (U.S. News and World Report, April 30, 2015)
Your Email Double: A Classic Digital Dilemma (NPR and Wall Street Journal, September 12, 2014)
Opinion
Insurers' Exclusion of Disease Treatments Increase Cost (Washington Examiner, March 8, 2018)
Guest Commentary: Many Being Denied Health Coverage (Illinois News-Gazette, November 12, 2017)
Rhode Island's Chronically Ill At Risk (Providence Business News, November 10, 2017)
State's Chronically-Ill at Risk for Being Denied Access to Treatment (Columbia Daily Tribune, October 31, 2017)
When it Comes to Health Insurance, Quality Matters Too (Washington Examiner, October 24, 2017)
New Yorkers with Chronic Diseases Often Denied Health Coverage: View (LoHud, October 5, 2017)
National View: Minnesota's Chronically Ill Risk Being Denied Treatment Coverage (Duluth News Tribune, October 2, 2017)
Another Voice: Patients Have a Right to the Treatments Ordered by Doctors (The Buffalo News, May 22, 2017)
More Medicinal Providers Will Help Ease Patients' Pain (Albany Times Union, May 16, 2017)
Health Insurers Deserve Blame for Higher Drug Costs (Des Moines Register, July 7, 2016)
Opinion: Stop Allowing Health Insurers to Put Profit Over Public Health (July 1, 2016)
View: Dangerous, But Needed Drugs (February 15, 2015)
What Are Biosimilars? Zarxio, First Drug Of Its Kind Approved In US (March 6, 2015)
Facebook Organic Reach Decline Called ‘Catastrophic’ For Nonprofits As Newsfeed Vanishes (February 6, 2015)
When Facebook Doesn’t Like Your Criticism (February 11, 2015)
Publications
Openness to and preference for attributes of biologic therapy prior to initiation among patients with rheumatoid arthritis: patient and rheumatologist perspectives and implications for decision making (Patient Preference and Adherence, Volume 10, March, 2016)
Demographic Differences in Health Related Information Technology Use Among Patients with Rheumatic Diseases (ACR Poster, Abstract #1422, 2014)
Speeches & Broadcast
We are pleased to announce that Seth Ginsberg, a patient advocate, who also is the co-founder and president of Creaky Joints, an arthritis advocacy organization, will present this year's opening keynote....
Meet Seth Ginsberg, founder of CreakyJoints, amongst others, as he very articulately presents the relation between ePatients and pharma research, on stage, at Doctors 2.0 & You....
Seth Ginsberg is a patient advocate and spokesperson. Diagnosed with spondylarthritis at 13, Seth quickly realized the importance of support, education, advice and up-to-date information for people living with a chronic illness such as arthritis.
Seth Ginsberg talk about the Affordable Care (F)act initiative. Give countless people the inspiration and hope that you now have, thanks to healthcare reform. Simply upload a short video to describe your personal Affordable Care (F)act.
Interview with Seth Ginsberg - Global Healthy Living Foundation
Addressing the 2013 World Stem Cell Summit in San Diego, California, December 5, 2013.