Seth D. Ginsberg began his career as a health advocate at age 13 when he was diagnosed with a form of arthritis called Spondyloarthropathy. Since then, Seth has become a thought leader and social entrepreneur in the global healthcare conversation - with a passion for improving access to healthcare for everyone.
Seth helped pioneer the online patient community concept in the United States, co-founding the first online arthritis community called CreakyJoints, in 1999. The CreakyJoints network has evolved into a customized website of patient education, emotional and personal support services, advocacy initiatives and patient-centered research efforts - for tens of thousands of patients and their families all throughout the world with a current focus on the United States, and Commonwealth regions (Australia, United Kingdom and Canada). The Global Healthy Living Foundation is the non-profit parent organization of CreakyJoints, which Seth and GHLF co-founder and social entrepreneur Louis Tharp created in 2004.
Seth and his team innovate ways to accelerate access and improvements to care through a unique combination of government-funded research initiatives, public-private partnerships and grassroots advocacy in all 50 U.S. States and Puerto Rico. He works closely with the Congressional Arthritis Caucus, Congressional and Senate Committees, the U.S. Department of Health and Human Services (HHS), the Food and Drug Administration (FDA) and Centers for Disease Control (CDC), as a representative of patients as a co-founder of GHLF's 50-State Network. Seth is a principal investigator of the PCORI-funded research network 'ArthritisPower'.
He lives in Manhattan with his wife Cara Zelas and their daughter, Grace. Cara is an author, early-childhood educator and social entrepreneur originally from Sydney, Australia. Click here more information about Cara's book series and curriculum "The Big World of Little Dude".